NeuroStemCell
European Consortium for Stem Cell Therapy in Neurodegenerative Desease
Ethic Advisory Panel
It is established to oversee and monitor research activities conducted with human ES cell lines and fetal derived cells and ensure partners conduct this research in accordance with the national ethical and legal requirements and EU regulations. The panel is charged also with oversight of societal, safety and animal welfare issues related to the NeuroStemcell project.
The panel is chaired by Dr. Goran Hermeren, Ethics Director.
The members will not be engaged in any of the research work packages and will be able to offer independent opinions. The Panel will also be engaged in the Ethical Workshop(s) and Workgroups through which we will seek to both monitor opinion and inform the wider scientific community and consequently the public of the nature and goals of research with human ES cells.
The following distinguished experts will serve on this panel:
Göran Hermerén
Professor and artist. He has been professor of philosophy at several universities, and since 1991 professor of medical ethics at Lund University, Sweden. He is currently President of the European Group on Ethics in Science and New Technologies (EGE) in Brussels, chair of the Advisory board of the German Reference Centre for Ethics in the Life Sciences (DRZE) in Bonn and involved in several EU-funded research projects. He has numerous publications, mainly on ethical problems in medicine, besides authoring and editing books on research ethics, aesthetics and philosophy of art. He is also an artist, and has exhibited his abstract paintings and graphical works in Sweden and abroad. He lives in Lund, Sweden.
Giuseppe Testa
Prof. Giuseppe Testa, Istituto Europeo di Oncologia (European Institute of Oncology, Milan)
The focus of Dr Testa’s lab is to explore the function of histone methylation in the establishment and maintenance of cell identity and its deregulation in cancer. We use advanced genome engineering technologies to investigate the function of selected histone methyltransferases (HMTs) both in cell culture systems (mouse embryonic stem cells) and in vivo (conditional gene targeted mice).
Inez De Beaufort
Professor of Health Care Ethics at the Erasmus Medical Center Rotterdam Education Graduate in Theology at University of Utrecht; Ph.D. (in theology) on human experimentation at University of Groningen Experience Member of the EGE since 2001; Senior Research Fellow at the Institute of Bioethics in Maastricht; Professor of Healthcare Ethics at the Erasmus University, Rotterdam (since 1991); Member of the Health Council, and the Central Committee on Research involving Human Subjects; Member of many different ethical committees and committees that review research; Expert on ethics in a number of legal cases; co-ordinator (with the University of Manchester) of the project Individual Responsibility for Health; Coordinator of EU-projects: Beauty and the Doctor; Medical Ethics and Fiction and Eurobese (on overweight/obesity; Lecturer in many ethics courses for lay persons, medical students, nurses, physicians and mixed audiences; Author of papers on a wide variety of topics in medical ethics such as reproductive technology, euthanasia and end of life, beauty and ethics, paediatrics and ethics, fiction and medical ethics etc.
Bettina Shöne-Seiffert
Professor Dr. Bettina Schoene-Seifert, M.A. (Georgetown Univ.) studied medicine and philosophy in Freiburg, Goettingen (both: Germany) and Vienna (Austria), and took the MA-program in bioethics at Georgetown University. She earned her board certificate and a medical doctorate as well as a philosophical PhD. She started professional work as a resident in paediatrics (Univ. Goettingen) and later served as an associate professor in various philosophy departments (Goettingen, Zuerich, Hannover). In 1993/94 she was a fellow at the Center for Advances Studies/ Berlin. Since 2003 Schoene-Seifert holds the Chair for Biomedical Ethics at the University of Muenster (Germany). She has served for several years as a member of the German National Ethics Council (which she left on her own decision in 2010). Fellow of the Max Planck Society, and a member of the Academy of Sciences & Humanities at Goettingen and the Leopoldina National Academy of Sciences. She has widely published on various questions in the field of medical ethics. Currently she is working on enhancement, rationing scarce medical resources, neuro ethics, research ethics, stem cell research, and, more fundamentally, on matters of normative justification in applied ethics.